If your child has the above symptoms he or she may have
Kawasaki Disease and should be seen by a doctor immediately.
Welcome to the Kawasaki Disease Foundation, a non-profit organization dedicated to Kawasaki Disease issues. The Kawasaki Disease Foundation is partnership of parents, patients, and professionals dedicated to advancing Kawasaki Disease issues. The Foundation focuses on awareness, support, and research.
Kawasaki disease (KD), also known as Kawasaki syndrome, is a serious illness characterized by inflammation of blood vessels throughout the body that primarily affects young children and infants. Kawasaki disease is the leading cause of acquired heart disease in children. Although about 80 percent of patients are under five years of age, older children and teenagers can also get KD, but this is uncommon. KD is more common in boys than girls, and the majority of cases are diagnosed in the winter and early spring. It is not contagious.
The disease is named after Tomisaku Kawasaki, a Japanese pediatrician who first described the illness in the medical literature in 1967. Although it is more prevalent among children of Asian and Pacific Island descent, KD affects people of all racial and ethnic groups. It is estimated that more than 4,200 children are diagnosed with Kawasaki Disease in the U.S. each year. The cause of KD is unknown, although an agent, like a virus, is suspected. There is no currently accepted scientific evidence that KD is caused by carpet cleaning or chemical exposure.
Kawasaki Disease is characterized by an inflammation of the blood vessels throughout the body. There is no specific test for KD; doctors make a clinical diagnosis based on a collection of symptoms and physical findings. Early symptoms of KD include:
- Fever that lasts for five or more days
- Rash, often worse in the groin area
- Red bloodshot eyes, without drainage or crusting
- Bright red, swollen, cracked lips, "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off
- Swollen hands and feet and redness of the palms and soles of the feet
- Swollen lymph nodes in the neck
Understandably, children with these symptoms are extremely uncomfortable and irritable. Any parent whose child has persistent fever and any of these symptoms should take him or her to the doctor immediately.
Without treatment, about 25% of children develop heart disease involving the coronary arteries. Timely diagnosis and treatment (which usually includes intravenous gamma globulin) is highly effective in preventing coronary complications. Doctors continue to study the long-term outcome of children who do not appear to have coronary involvement. Other kinds of longer-term consequences (e.g., non-coronary) are extremely rare. There is no evidence that links KD with autism or a seizure disorder. A very small number of KD children might have a seizure in the early acute stage of KD when there are very high fevers, but there is no on-going or long term seizure prone condition.
Save the Date: "To Save a Child's Heart Gala" - November 9th, 2013
Kawasaki Disease Foundation "To Save a Child's Heart" Gala and Informational Symposium
November 9, 2013, La Jolla, California at The Torrey Pines Hilton
Registration and more information coming soon. In the meantime, if you have questions, please contact:
Calen Page Memorial Walk - May 4th in Big Rapids, MI
Please join us for the 4th Annual Calen Page Memorial Walk in Big Rapids, MI on May 4, 2013. The walk will raise funds for a diagnostic test for Kawasaki Disease. For more information, please click here. To register, please print this form and return it to the address within.
Don't STOP the BEAT 5k & Fun Run
Don't STOP the BEAT 5k & Fun Run
Kawasaki Disease Awareness - In Honor of Owen Grant (click for more details)
Saturday, July 20, 2013 at 7:30 AM (EDT)
Grey's Anatomy This Thursday March 28th
Dear Friends and Family of the Kawasaki Disease Foundation -
This Thursday, March 28th, ABC's Grey's Anatomy will feature a story that's near and dear to many of us - the story of a mother's intuition and a child's fight for life before he is diagnosed with Kawasaki Disease.
This episode will star actress and KD parent Sarah Chalke, as she relives one of the worst nightmares parents can go through - fighting for a correct diagnosis for her sick child.
While it may be hard for some of us to watch, we urge you to tune in to your local ABC affiliate Thursday night and help spread the word with your friends and family.
The KD Foundation will be hosting virtual "viewing parties" throughout the evening on Facebook and Twitter (@TheKDF), answering basic questions, sharing stories and urging people to donate to the foundation. Please join us and help spread the information, so other families can have a rapid diagnosis and treatment.
THIS THURSDAY: March 28th at 9 PM/ 8 PM Central.
Actress and KD Parent, Sarah Chalke
Join us online during the show to help raise additional awareness for Kawasaki Disease. Follow the conversation:
Twitter - https://twitter.com/theKDF
Hashtags: #KDGA & #KawasakiDisease
Grey’s Anatomy KD Episode March 28, 2013
On Thursday, March 28 ABC’s hit drama, Grey’s Anatomy will tell the story of a mom advocating for her infant who is suffering from KD. The mom is played by Sarah Chalke, who in her real life is a KD parent. So, the story is told with incredible emotion and authenticity. Following the episode, Sarah will make a public service announcement directing viewers to the KD Foundation for more information. For more about the show, see this TVLine article.
We are encouraging families across the country to invite friends and family to their homes to tune in and experience what KD parents often go through when their child is afflicted by KD. A viewing party can be a great way to increase awareness and raise much needed funds for KD research. If hosts are comfortable making a donation ask, the simple message is that KD research is desperately needed because the budget deadlock in our federal government threatens the research programs that we believe will one day lead to a diagnostic test. Donations can be mailed to the KD Foundation or made online.
KD Foundation Newsletter: Volume 1, Issue 4
Click here to read the KD Foundation newsletter: Volume 1, issue 4.
KD Foundation Newsletter: Volume 1, Issue 3
Click here to read the KD Foundation newsletter: Volume 1, issue 3.
Kawasaki Disease in India
"The Eye Cannot See what the Mind Does Not Know"
KD Foundation Newsletter: Volume 1, Issue 2
Click here to read the KD Foundation newsletter: Volume 1, issue 2.
Kawasaki Disease Foundation Benefits from "All-Star" Win
On April 3, 2011, Chef Nate Appleman succeeded in becoming "Chopped All-Stars" first champion, with his charity the Kawasaki Disease Foundation receiving $50,000!
Beginning in March, the Food Network began running "Chopped All-Stars," and pitched it as a five-part battle where chefs you know and love go head-to-head in the Chopped arena. A total of 16 different chefs competed, with each chef choosing charities to represent. The champion of the competition would win a $50,000 donation to their charity. Appleman's choice of the Kawasaki Disease Foundation was personal, as his son was diagnosed with KD last year, and was left with coronary aneurysms as a result.
The Kawasaki Disease Foundation was thrilled to establish this relationship with Appleman, who, in addition to competing on "Chopped All-Stars," has also competed on "The Next Iron Chef," was the 2007 James Beard Rising Star Chef award-winner and was recently hired by Chipotle to lead development of new menu items. The donation of the money from the competition will be, indeed game changing as Appleman stated after winning the competition. The donation will be earmarked for research, and will aid doctors who are currently working on a diagnostic test for KD.
For more information on â€œChopped All-Starsâ€ or Chef Nate Appleman, please visit http://www.foodnetwork.com/chopped/index.html
ABOUT THE KAWASAKI DISEASE FOUNDATION - The Kawasaki Disease Foundation is a national nonprofit organization of parents, patients, and medical professionals dedicated to advancing Kawasaki Disease issues. The Foundation focuses on awareness, support, and research in the area of Kawasaki Disease. The Foundation promotes early detection and treatment of Kawasaki Disease, and provides information and support for families through a nationwide telephone and e-mail help network. For more information, visit: www.kdfoundation.org.
Vote for Food Network All-Stars Favorite!
Make sure you log onto the Food Network page and vote for the Chopped All-Stars Fan Favorite! You can vote up to 10 times a day!
And be sure to tune in to the Food Network this Sunday at 9pm to see the next installment of the competition - Chopped All Stars!
KD Foundation Newsletter: Volume 1, Issue 1
Click here to read the KD Foundation's first newsletter. Volume 1, issue 1.
Celebrity Chef Nate Appleman to Represent KD Foundation
Celebrity Chef Nate Appleman to compete on Chopped All Stars representing the Kawasaki Disease Foundation
In March, the Food Network is running Chopped All-Stars a "fierce five-part battle" in which "chefs you know and love go head-to-head" in the Chopped arena.
Each celebrity chef has chosen a charity to represent with the winner receiving $50,000 for their charity. Chef Nate Appleman chose the Kawasaki Disease Foundation - KD is close to his "heart" because his son is a survivor.
Please tune in to see Chopped beginning March 6 at 9PM EST on the Food Network!
For more information, please visit http://www.foodnetwork.com/chopped/index.html
News Release - January 26th - National KD Awareness Day
KD Foundation Declares January 26th as, "National Kawasaki Disease Awareness Day."
Read the Resolution to be presented before the 111th CONGRESS, 2nd Session.
New Video: KD, A Parent's Guide
We just added a new video: Kawasaki Disease, A Parent's Guide. Click here to view it.
Videos from KD Parent Symposium
You can view the November 2009 KD Foundation-sponsored Parent Symposium in its entirety online. The video is split into a series of 19 parts. Click here to view the series.
Kawasaki Disease Foundation Press Release: What is Kawasaki Disease? Click here to download.
9th Int'l KD Symposium Abstracts
Article on KD Long Term Health
Interesting article on health of KD patients long term. Click here to read.
New York KD Awareness Week