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About Us
Overview
In October 2000, a group of parents and professionals collaborated to create
the Kawasaki Disease Foundation (KDF), the only non-profit organization dedicated
exclusively to addressing issues related to Kawasaki Disease. KDF was a by-product
of a highly successful event, the Kawasaki Disease Parent’s Education Symposium,
which was sponsored by Children’s Hospital Boston and the Heart Council at Children’s
Hospital. This event brought together over 150 parents from around the United States
and Canada to learn current and accurate information from a team of internationally
recognized experts and to promote peer support among families and patients.
Mission
Kawasaki Disease Foundation strives to be at the forefront of Kawasaki
Disease issues by uniting the personal insight of families with the expertise of
medical professionals. KDF’s mission is based on three basic principles.
- Raising awareness among the medical community, childcare providers, and the general
public is critical to early diagnosis and treatment
- Facilitating support among families is essential to helping families cope with this
uncommon illness and the potentially devastating effects of heart damage
- Increasing funding for research is necessary to advance diagnostic guidelines, enhance
the existing treatment, improve short-term and long-term follow-up care, and find
a cause
Supporters
Kawasaki Disease Foundation represents a true collaboration of parents
and medical professionals. The board of directors consists of five parents whose
children who have had Kawasaki Disease, and four medical professionals who are recognized
as Kawasaki Disease experts. Other parents and professionals from around the United
States also contribute a significant amount of time and effort to support the organization.
Board Members
Greg Chin
Ipswich, MA
Catherine Frank
Havertown, PA
Monica Goss
Chicago, IL
Lynda Moore
Lake Ridge, VA
Tony Olaes
Poway, CA
Organization
KDF was incorporated in October 2000 as a non-profit organization under
Chapter 180 of Massachusetts General Law (applicable to charitable organizations)
and intends to operate in accordance with Section 501(c)(3) of the Internal Revenue
Code. The Foundation's tax exemption number is 17053137024021.
Click here to download a copy of the IRS determination letter.
KDF is supported entirely by donations and volunteers. We have no paid staff and
our operating costs are kept to a minimum level. Your generous
contributions will go directly to support programs that can make an impact
on the lives of many families and children.
Contact Information
Kawasaki Disease Foundation
9 Cape Ann Circle
Ipswich, MA 01938
Tel: 978-356-2070
Fax: 978-356-2079
Email: info@kdfoundation.org
Donations
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